For those of you who are curious what a CFer (myself) does as far as meds in a week, here you go. If you are a CF patient, please ask your doctor before you attempt to use this routine. It has taken years for me to get this routine to where it is today. I am currently on Augumentin as between a few lung infections and a middle ear infection over the last 6 weeks, I've been a little on the recovery side. Still I play in my championship softball game tomorrow night and cannot wait.
Monday, Wednesday, Friday routines
Hypertonic Saline Aerosol 20 minutes
Pulmozyme Aerosol 20 minutes
Therapy vest 40 minutes
TOBI 40 minutes (every other month)
Miralax (Monday only)
4 ZenPep enzymes with breakfast
2 Juice Plus with Breakfast (supplement)
1 Lexapro with Breakfast - for anxiety (not necessarily CF related)
1 Fish Oil pill
1 Caltrate
1 Source CF vitamin pill
1 Antibiotic (I'm on them this week)
1 Zithromax pill
4 Pancrease Enzymes for lunch
4 Pancrease Enzymes for snack
4 Pancrease Enzymes for dinner
2 Juice Plus with dinner (supplement)
1 Fish oil pill
1 Vitamin D pill
1 Caltrate
1 Antibiotic (I'm on them this week)
1 Nexium
Hypertonic Saline Aerosol 20 minutes
Vest 40 minutes
TOBI 40 minutes (every other month)
Tuesday, Thursday, Saturday and Sunday routines
Hypertonic Saline Aerosol 20 minutes
Pulmozyme Aerosol 20 minutes
Therapy vest 40 minutes
TOBI 40 minutes (every other month)
Miralax (Thursday only)
4 ZenPep enzymes with breakfast
2 Juice Plus with Breakfast (supplement)
1 Lexapro with Breakfast - for anxiety (not necessarily CF related)
1 Fish Oil pill
1 Caltrate
1 Source CF vitamin pill
1 Antibiotic (I'm on them this week)
4 Pancrease Enzymes for lunch
4 Pancrease Enzymes for snack
4 Pancrease Enzymes for dinner
2 Juice Plus with dinner (supplement)
1 Fish oil pill
1 Vitamin D pill
1 Caltrate
1 Antibiotic (I'm on them this week)
1 Nexium
Hypertonic Saline Aerosol 20 minutes
Vest 40 minutes
TOBI 40 minutes (every other month)
Plus Workouts:
Mon, Wed and Friday - 10 minutes of running, 25 minutes of working out
Tues, Thurs and Saturday - 25 minutes of running, 20 minutes of working out
One workout at Lifetime Fitness during the week: 40 minutes
One game of softball: 55 minutes
Sunday - a much-needed day of rest
Over a week's time, that means:
1,540 minutes of treatments
213 pills
2 Miralax treatments
335 minutes of exercise
Hey Andy!!!! Thanks for sharing this with me. You are on dedicated fibro. Big time commitments on the VEST. Over 80 mins a day?!?!?
ReplyDeleteSo how did you develop this plan?
I hope you are feeling better.
Take care Andy and enjoy that softball game :)
I've just played around with it for years and found a good mix. Everyone has their own thing. Thank you!
ReplyDeleteHi Andy, I live in the Netherlands and have a very different routine of meds. I am 45 years young. It was very interesting to read this blog of you.
ReplyDeleteGreetings.