P90X - Day 24 complete

I am 24 days into the 90 day P90X routine. I must say that I can see a difference in my core and even a little bit in my flexibility. I would recommend this routine to others. If you've never heard of it, P90X is a 40 minute or so workout that practices confusing your muscles. I'm still running, swimming and biking weekly but I'm doing P90X 7 days a week.

My health continues to improve. I am off of antibiotics and I feel very strong.

I'm also considering doing another video to raise awareness for cystic fibrosis. My thought was to do a video showing the routine a CF patient must go through on a day-to-day basis. I'd like to hear everyone's thoughts.

I hope that everyone is well.

Andy

And so it begins...

Today begins the trial into the murder of my friend Rusty Sneiderman here in Atlanta. I do plan to attend the trial but not until after the jury selection which goes on this week.

I have had various media sources asking me to comment on the case but I have declined so far. I did send out a note about my book since the FDA approved a major drug for cystic fibrosis. Sadly, none of these same media participants even responded. It's sad when the media generally prefers to cover bad news and not potentially great news. I guess that's the world we live in but it's a shame. I think inspiring stories touch people's lives and it's sad that the media doesn't agree with that.

Anyway, Rusty's entire family is in my thoughts today and for the next several weeks. He was a great man who should still be here today spending time with his wife and children.

I hope all of you are well.

Andy

Thank you Michael J. Fox

Thanks to Michael J. Fox, my son has 1,929 skittles. Let me explain.

Back to the Future is one of my favorite movies and it starred Michael J. Fox. In the third installment (which I admit was not that good), they go back to 1885. For some reason, that number stuck in my head when I was at Donuts with Dads at Ethan's school and we were putting in guesses for a jar of skittles. I put in one guess at 1885. Andrea laughed at me and told me that was not going to be close and that I should have said around 1,000 which most of the dads did. I later found out that the dads put in multiple guesses so my one guess probably had no chance. We all know where this is going, right?

This morning I received the following picture from Andrea when she picked up Ethan saying "I will never doubt you again."

I was so excited when I talked to Ethan until he said "Daddy, I have a jar of M&M's!" I said "Buddy, they're skittles." He said in a more determined voice, "No, daddy! They are M&M's!" I decided since I won the jar, I'll leave it up to Andrea to let him down gently. Honey, we're even.

I hope all of you are well.

Andy

My health

Hey Everyone,

I hope that you're well. I've been working hard of late to get my health back where it needs to be. I've been doing more treatments, going in a little later to work and working on a new exercise program.

First off, I've been taking antibiotics twice a day, I've been doing my chest therapy 10 minutes longer at night. I've also been on TOBI so that adds another 40 minutes both in the morning and at night. It's funny. I was thinking about this the other day. While Ethan does not have CF, he does almost everything a person with CF does. He sits with me the whole time while I do my therapy and work out (Of course we play X-Box together so that helps). He brings me my pill bottle (child-lock but he never tries to open it anyway as he understands it's daddy's meds). He really helps me because I never feel that lonely feeling anymore in the mornings when I do my treatments.

I also started a new workout routine and am sixteen days in (I've attached a picture of my increased muscle mass). I'm not one to brag about anything but I am proud of the fact that I can attain this kind of strength especially when the image of someone with CF is generally skinny. Heck, I had arms like toothpicks in college. I am now a member of Beach Body or as you may know it, P90X. I watch the videos and work out with Tony, the instructor on TV. It's tough but I can already see a difference. When I got back from my cruise at the end of December, I was up to 188 pounds. This morning, I weighed myself and I weigh 179 pounds. I've changed my diet to going from 2,000 calories a day to 1,500. I'm trying to avoid protein bars during the day and I'm also drinking whey protein once or twice a day. I'm no longer stuffed up. I'm still running, biking and swimming at the gym. I've also added situps to the mix. I'm definitely faster than I've been in a long time. I'm hoping my increased speed will be an asset when softball season begins in March.

My health is something that is not easy to keep strong BUT it's worth it. There was a big breakthrough this week on the drug Kalydeco which will help some CF patients. There are more drugs that are coming out and some will help me. I can't afford to be sick and not allow myself to take advantage of these breakthroughs.

I hope everyone else is doing well.

Andy

Big news in the CF world

This came out today. This drug has been in studies for years and finally Kalydeco is here!!!

http://www.huffingtonpost.com/2012/01/31/kalydeco-cystic-fibrosis-cause-drug_n_1244218.html?ref=fb&src=sp&comm_ref=false

This will help so many.

Andy

Staying home and a hilarious response from Avery

I decided it wasn't worth it to go to Chicago. My health was at risk and it's not worth it. It's snowing in Chicago and I'd be walking quite a bit. I'm stuffed up, coughing and on antibiotics but I will get better. Am I depressed? A little but only because I feel like CF got the better of me. HOWEVER I know I made the right decision.

I'm frustrated with the insurance I took on the tickets though. They are making me fill out 7 pages of paperwork and get a letter filled out by my doctor (I feel like I'm back in grade school). I thought the insurance was supposed to make it easier. The guy on the phone asked me why I cancelled. I told him I had CF. He said "But that was something you had before the trip and we don't cover that." I said "But I have a cold which makes it worse." I felt so angry as if this guy didn't trust me. I wanted to scream, but I didn't.

I filled out most of the forms this morning and sent the rest to my doctor. I started antibiotics on Saturday and am doing a decongestant every 4 hours. I will get better.

I did have something really funny happen though. Avery, Andrea and Ethan went and saw "Annie" at the Fox (picture attached). Avery came home and said "Daddy, I'm very lucky and I know it now." I said "Awwww...sweetie. You realize now how lucky you are to have 2 parents who love you because for a long time Annie didn't have that and neither did her friends at the Orphanage? I'm so proud of you. That's an important life lesson."
Her response is the true punchline:

"No, that's not it. Mommy, let me have a whole bag of Cheetos!!!"

Kids will be kids.

Have a good one.

Andy

A Disappointing Doctor's Appointment

The great thing about having a blog is telling people when things are great. The tough part is being completely honest when things aren't so great. My appointment today was frustrating. My numbers were down 8 points after my all-time high 3 months ago. Still I'm back around my baseline so it's not like I should be freaking out.

This is the time of year where my numbers constantly decline. I'm looking at the positives. I stayed at my baseline despite having a slight cold, the weather being freezing and this time of year is always a tough one for me. I will have to continue to keep up my tough workout regimin.

Today was the first morning that I started using free weights instead of the machine. I could feel it in my muscles. I also ran up 5 floors of steps after my appointment to remind CF that I'm not backing down.

I now have to decide whether I'm taking my business trip to Chicago. It's freezing there and 10 inches of snow are expected Saturday. Is it worth it to go? Dr. Sueblinvong prescribed me Augmentin for safety. I have to weigh the factors and decide what I'm going to do.

I'll tell you one thing. In the past, frustration would have turned to sadness which would have ended up turning into depression. Today though, I can tell I'm mentally strong. Frustration has turned into anger which has turned into determination. I'm going to get right back on top in the next few months. Count on it!!!

Thanks for listening. I hope that everyone is well.

Andy