Tuesday, July 6, 2010
First off, enjoy the picture of Avery (Credit for this picture goes to Andrea and apparently Dr. Dre).
Today I started my Tobi which means 2 more hours of treatments per day for the next 28 days. That means fifty-six more hours of therapy this month. That means a few things. 1) I'll have to wake up extremely early every morning. 2) Andrea will have to take the kids a little longer in the mornings. 3) I will win 5 more Super Bowls on Madden Football.
It's frustrating to add those two hours meaning I'll be doing a total of about 4 hours of treatments per day. That's 1/6 of my day right there. You can see why many CF patients don't have full-time jobs, but I do. So 4 hours of treatments, 8 hours of work and 6 hours of sleep don't leave much time for fun so these are the months I take advantage of my time with the kids and Andrea. I feel fortunate though because there are a lot of CF patients out there who have to do a lot more treatments and have to use Oxygen tanks to assist them.
My depression seems to increase when I'm on Tobi because I do tend to spend a lot more time by myself and also because I get very frustrated with the amount of time I have to do my treatments. Sometimes being by myself for long periods of time can be dangerous. It allows me to think and when I'm depressed I tend to think negatively. I will remind myself to say the Serenity prayer which is a prayer that is supposed to release the stress from my body. It worked at the Peachtree. I said it a few times when my body wanted to quit.
I think I'll be fine this time. I learn everyday how I want to live my life in a positive way and how I want to give my family the best Andy I can give them. Not only do they deserve that, but I deserve that too.
Thanks for reading my blog. I wish all of you a good day.