Monday, March 19, 2012
I have been working on the big CF video the last few weeks. I'm in the final phase - getting the music approved (we are hoping to get approval on one of two songs - both are major hits from the last decade or so). This is something I've been thinking about for a while. I wanted people to know what it's like to have CF and to learn what a day in the life of someone with cystic fibrosis is like. I think the video will teach but it will also motivate.
Norfolk went really well. I spoke for about an hour at their CF Education Day in Virginia. I got back yesterday. I saw my good friend Carin Simon while I was there. She looks terrific.
Some have said that you have seen me on TV lately standing up for Andrea and talking about Rusty. I know some of you have told me that I'm making a mistake by doing this and others have told me that I'm doing a good thing. I appreciate the advice and the support. I'm doing what I think is right and that's good enough for me.
I'll write more later in the week.
I hope that everyone is well.