Thursday, September 9, 2010

It all starts at 11:44 P.M.

Well, it's 11:44 pm and I have started another month of Tobi. I will endure 28 days of treatments. I caught a cold the other day (or it's bad allergies) and coincidentally my doctor's appointment is tomorrow. Ugh! I hate being sick and going in because it almost guarantees my PFTs (pulmonary function tests) will be down. Also I will be doing labs (blood work) in the morning and a glucose test throughout the day to see if I have CF-related diabetes. I have to fast from midnight to noon. Maybe I'll just consider it a start to a new diet. I think I have love handles.

Today was Rosh Hashanah or the start of the Jewish New Year. It's a little confusing if you're not Jewish and you see people wishing each other a happy new year in September. You may be a bit concerned about them. We're okay though. I went to services today as it's tradition to miss work and pray on the new year. Our rabbi, Joshua Heller, had a great sermon today. I shouldn't just say today. He's always really good. He talked about making mistakes and making things better out of your mistakes. If that doesn't describe my goal from the last few years, I don't know what does. Even Andrea said it was like he was talking to me. It was tough having a cold and wearing a suit and sitting in a room with thousands of people but during that sermon it was as if I was the only person in the room. Thank you Rabbi Heller.

I'm worried about my doctor's appointment as I always am but I know I've worked hard and before this cold I was kicking butt in the gym. I know I'll have several tests too and that means weeks of waiting for results which is another wonderful thing about having cystic fibrosis.

I had a great day off with Andrea and the kids. Andrea made a great dinner the other night. I think she surprised herself but I think she's a really good cook and just doesn't give herself enough credit. Last night Andrea and Emily put the kids to bed so I could rest and Andrea let me rest today after synagogue as she went to a friend's house for an after synagogue meal. I've had bad cough the last two nights and could not sleep. I took a nap today though and the coughing is definitely down.

Softball starts on Monday as Off the Bench will be ready to show off the new crew to the rest of the league. They are going to be surprised. Avery has soccer on Sunday so Coach Lipman will be ready to go. The four of us are going to the Braves game tomorrow night. The team could use our help.

Well, that's all. I will let everyone know how the doctor's appointment goes. Please keep me in your thoughts. I hope that all of you have a great weekend.



  1. Hoping you have a good appointment and get the Braves on a new winning streak!

  2. I always seem to get sick before my appointments too! I think by now they must think I'm lying when I tell them "well, my PFTs are down because I just had a cold." I've got to do labs/bone scan/glucose test at my next visit. Ew.

    I actually just did a blog post yesterday about visiting the CF clinic, though it was really more of a rant about always having to wait. I rarely write about CF, but I just had to let off some steam. You can check it out here if you're interested: