Tuesday, March 15, 2011

A CFer must have a heck of a memory!

So here are the 13 things I force myself to remember every morning (remove the workout and running in place when figuring out how many of these things I do at night too). This does not include the even months when I do my Tobi.

Therapy Routine
1) Pour my sinus mix into both nostrils
2) Spray my antibiotic in both nostrils
3) Spray my Sinus spray into both nostrils
4) Inhale my Xopenex
5) Do my Hypertonic Saline
6) Run in place for 15 minutes during Hypertonic Saline.
7) Start Vest Therapy
8) Do my Meditation for 5 minutes. That usually entails repeating the serenity prayer.
9) Do my foot medication (I have some dried up skin I have to put lotion on twice a day - not CF related)
10) Cough and spit up mucous after Hypertonic Saline.
11) Start Pulmozyme Aerosol.
12) After finishing Vest and Pulmozyme, go to the bathroom to spit up mucous.
13) Do my 30 minute workout (Monday - Chest and legs, Tuesday - bis and tris, Wed - shoulders, forearms and back, Thursday - Abs, Chest and Legs, Friday - Abs, bis and tris, Saturday - Shoulders, back and forearms, Sunday - rest).

Pill Preparation
Every morning I must remember to collect my pills - 20 Zen Pep (meals), 4 Juice Plus (supplements), 1 Nexium (for reflux), 3 Calcium Pills (for Ostopenia), 2 cholesterol pills, Lexapro and Buproprion (for emotional stress), ADEK (Vitamin A, D, E and K), 1 Zithromax (every Monday, Wed and Friday), 1 Vitamin on Mondays and Miralax Mondays and Thursdays.

The reason I put in an exact amount is because if I don't remember if I took pills or not, all I have to do is count. That makes it much easier than having to retrace my steps. It also allows me to have 5 meals per day (4 Zen Pep per meal) without running out of pills.

Also, these pills must be taken at the right time (prior to meals, during meals or right after meals). If I fail to do that, there was no point in taking them. My therapy machine is timed for 40 minutes. In those 40 minutes, I have five settings that I have to change the frequency (25 minutes, 20 minutes, 15 minutes, 10 minutes and 5 minutes).

Parental Responsibility
Try doing this and occasionally preventing a two year old and five year old from jumping on my shoulders so they can get the sensation of my vibrating vest and you have my morning and evening rituals.

Have a good one.


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