I have CF, but it will never have me!: What's been going on?

Wednesday, May 15, 2013

What's been going on?

I know I haven't written in several months. Life has been busy though. I've had a few speeches including one in Orange County, California this past weekend. It went very well. I spoke to the Children's Hospital in Orange County.

I'm currently on Cayston which is a new med like TOBI. I had to stop TOBI because I was having hearing issues. Now I'm stopping Cayston because it has caused me to have splotches (rashes) all over my face and body. Picture attached. I look like I'm on the verge of turning into The Fly for those familiar with the Jeff Goldblum movie from the 80's. It's not a compliment. I'm going to take some time away from inhaled antibiotics and see how I do. On the bright side, I won't look like a teenager dealing with acne.

I apologize for some of these pictures being sideways. I changed them to vertical but it is not taking on the blog site.

I've also been working on a music video. I know what you're saying...Andy Lipman and music video don't exactly go hand and hand. This video will raise awareness for CF and I have written and sung the song for the video. Again, I know what you're saying. I didn't know Andy Lipman could sing. I can't. Trust me however the sound coordinator made it sound decent. My dad didn't even know I could read when I published my first book so I suppose it's possible that I could make a successful music video. My goal is for the video to go viral. My son and daughter (especially my son) love the song. I will reveal it at the end of May which is coincidentally Cystic Fibrosis Awareness Month.

In other news, Andrea has a tennis tournament this weekend so I wanted to wish her luck. Bring us home a trophy, honey! Avery did great at the state gym meet in Bainbridge, Georgia. She won a few medals. Ethan has become a decent baseball player and our team actually won 3 games and tied 1. I think this is my last year as a head coach though as I just don't have the time to commit to it. I was really proud of the kids though and especially Ethan. I'll be an assistant in the future.

Here is my little guy in his Athletics uniform.

As you know, I'm notorious for trying to win big prizes at the basketball competition at carnivals. That's why we have a huge dog and dolphin in our house. Well, add another dog to the mix. This is Fluffy who we won at Lemonade Days in Dunwoody!