Friday, October 21, 2011
Blowing CF out of the water!!!
First off, let me share some great news. My pulmonary function was up a record 9% today. It was the first time I've hit 90 percentile in my FVC in more than 2.5 years. FVC is Forced Vital Capacity meaning the amount of air which can be forcibly exhaled from the lungs after taking the deepest breath possible. It is the single most important indicator of an infection in the lungs.
I think the swimming and biking are really helping. I took a half day today so I immediately went to the gym after the great news. This is no time to get complacent. It's time to build on the great news. Last time, my doctor told me that science shows that our lung function declines as we get older. I told her I failed Science and therefore don't believe in it. I proved I'm more of a fan of "science fiction" than I am of science today. It's been an emotional day and I was thrilled to relay the news to Andrea this morning.
Wish for Wendy has broken the record for our sponsorship numbers this year and I'm going to credit that to Rusty Sneiderman. I worked my tail off to accomplish the ideas he had last year. Even while not with us, Rusty has made a difference for so many people.
How am I doing? I actually am doing well. Rejoining my gym has certainly helped as I am swimming, running and biking twice a week while still working out at home. TOBI is starting to take a toll on me. I only have one week left of my 28-day supply. I try to take a couple of 15-minute naps in my car during the week and I try to walk around as much as possible so I don't collapse from exhaustion.
The playoffs begin soon and my softball team is in first place. I hope I can win that first title as a captain.
My book will be arriving next week. I'm pretty nervous as to the reaction it will get but I know that it will make a difference for people who deal with difficult emotional and/or physical issues.
Thanks for your time. Have a nice weekend.