Thursday, September 15, 2011
D-Day: We'll call it a draw!
Last Friday was D-Day or should I say Doctor's Day. I suppose that D-Day fits since seeing my doctor is my own internal war. I'm scared to death the week leading up to this day because I know that the outcome cannot only change my day but also my entire life.
Andrea went to a wonderful presentation the night before and brought me a signed ball from a man who was there who is also a doctor. You may know him as Dr. J. He was there supporting "Keeping Your Cord Blood" as he lost a brother to Sickle Cell Disease. Saving Ethan's Cord Blood probably helped our son immensely as we had his stem cells re-infused 7 months after he was born to help heal his brain where the stroke damaged it. Medical science is amazing if we take advantage of it. Thank goodness Andrea has so much scientific knowledge. I'm good with sports so I'll help Ethan when it comes to that. Ha Ha!
By the way, the picture attached is one of many we had taken in Charleston by my friend Melissa. She did a terrific job. The picture is a microcasm of my life. My mom, as seen here, has always been behind me (my dad too but he couldn't make it to pictures that day). My wife and kids are always in the front of my mind as I want to get better for them. As far as me, I'm smiling in more ways than one because I know how lucky I am and how much worse things could be.
Back to the doctor, my pulmonary function numbers were down 1% which to most would be no big deal but I'm not one that takes a small dip as a moral victory. I am competitive as Hell! I don't want to accept it. My doctor said that people as they get older, whether they have CF or not, have lower pulmonary function. Again, I won't accept it. Heck, I nearly failed science classes several times in high school so I have never really accepted anything that science has told me, granted I did marry a scientist so I do everything SHE tells me :)
I'm not getting all depressed about it though, just a bit disappointed. I'm at a good weight right now (185). I've never been stronger as far as my arms, legs and chest. I run 17 minutes a day in place while doing my therapy.
It's a tough time of year for me. My dad was telling me the other day that September is his favorite month because football is back, the World Series is near and the trees are beautiful. All of that is true for me except it being my favorite. As it gets colder, which it has this week, I start to flashback to my depression where I can't go outside, the day gets shorter and I'm more susceptible to colds. You'd think that my birth month would be my favorite time of year but truthfully it's the month I fear the most.
During my appointment, I did decide to take part in my first study with regards to sputum cultures and how the cultures can determine when an infection is near.
Life in general is good. The kids are enjoying school. Andrea bought me an X-Box 360 for my birthday so I'm learning how to play it. My softball team is 2-0 and just destroyed the top team in our league 20-7. My book just went through its final revision.
Congrats to my sister Emily on a terrific fashion show at Aja in Buckhead and to my wife Andrea for a very successful Pampered Chef party in Norcross. Both events raised a lot of money and even more importantly, a lot of awareness.
I could take my test results and say "Well, it's only 1% so no big deal." I know that sounds fine to some people but I can't look at it that way. If I looked at cystic fibrosis reports that way, I wouldn't be here today complaining about them. I look at this report as a chance to prove more people wrong including SCIENCE!
Here's to my next report in 8 weeks and proving that the only science I know is Science Fiction.
Have a good one.