Friday the 13th: From Nightmare to Gratitude: My Mental Illness Story

I consider myself a strong person and not only because I have fought cystic fibrosis since the day that I was born. Don’t get me wrong. Cystic fibrosis is a devastating disease. It is not, however; the only disease that I face on a given day. Like one in four American adults in a given year, I fight mental illness. When most people think of someone having to fight a disease, physical diseases like cancer, heart disease or diabetes probably enter their minds. In my opinion, the struggle against mental illness requires just as much strength to survive as any physical disease. In many instances, suffering from mental illness coincides with battling a physical disease. My emotional enemies are high anxiety and clinical depression. These feelings don’t just arise when times are at their worst. Take what happened to me a few weeks ago as an example.



The disease that is often forgotten

I was at Alpharetta’s North Park. Wish for Wendy, the event my family and I started to fight cystic fibrosis, raised nearly $600K, a record-breaking fundraising performance. People expected me to do cartwheels and celebrate like I’d just won the seventh game of the World Series, but it’s when those final numbers are announced and the day turns to night, my feelings turn to something a bit unexpected. At least it’s unexpected to those around me. To a person who is well aware of the fight with depression and anxiety, this is just another day dealing with the struggle.

As the event was ending and friends and family who I’d seen and talked to throughout the day began departing, my thoughts turned to despair. It occurred to me that the next few months would be cold and dark due to the time change. Late fall and winter have never been my favorite seasons. Late fall is when I went to Ridgeview, a mental institution, 6 years ago. Winter is when my CF takes an ugly turn and usually requires IV’s.



My family at this year's Wish for Wendy

That Saturday evening, I found myself walking up to the vacant auction room as the rest of the attendees settled down to watch the semifinals and finals of our tournament. That night should have been a time to celebrate but thanks to anxiety and depression, it was a night to cope with my issues. It was a night to quietly sit there for five to ten minutes and calm myself by repeating the serenity prayer and meditating. Nights like these are agonizing for those of us who fight mental illness and I’m pretty sure it’s even more so for those that love us. These are what I call my “moments of darkness.”

These moments are horrible. I’ll be sitting alone contemplating death. I’m not considering suicide rather I’m thinking what death must be like. The lights and television are usually off. It’s the middle of the day. I feel like I can’t breathe and for once it’s not CF-related. All I think about is my life ending and living in complete darkness for the rest of eternity. As my pulse races, I begin to sweat. These “moments” rarely if ever occur in the spring, summer or early fall. They occur frequently as the days grow shorter from November to February.

My goal in this blog post is to show my readers what it feels like to battle anxiety and depression. I think most people think of anxiety as a quick moment where you’re worried about getting a test back and depression is just being sad about something. That’s part of it but not nearly all of it.

I believe some of my anxiety stems from growing up with cystic fibrosis. My life has been measured by tests since I was a little kid. None of them determining A’ or B’s on a report card. Each one instead determining the next step in my care.

I am open about my mental health issues. I see a psychiatrist bi-annually, a therapist three to four times a year and practice meditation when it’s needed. I am not ashamed of my emotional situation. As someone who deals with physical illness as well, I honestly don’t see much of a difference admitting I have depression versus saying I have cystic fibrosis. I believe that being transparent encourages others to ask questions, gain knowledge and perhaps gain insight into what it’s like to suffer from mental health issues.



I'm open about my mental illness because hiding it only brought me more issues.

How does one know he or she has a problem with depression and/or anxiety? Read the question below and choose your answer. I’ll then explain what my answer is and how it reveals my issues with mental illness.

Question: In the next week, you can have the following happen:

A. You have the best week of your life. Absolutely nothing goes wrong.
B. Nothing exciting happens. Things remain status quo.

My guess is that most “normal” people would choose “A.” That would have been my choice for the longest time, however; that is no longer an option for me.

When I was diagnosed with clinical depression and high anxiety, I learned that the only way I could survive on this earth is to live as even keel as possible and therefore I cannot choose “A.” While nothing bad may happen to me for an entire week, things can only go down from there hence why my only choice would have to be “B.” For me, going through highs and lows is very unhealthy. It was when people put me on a pedestal and lauded at my achievements that I had the tendency to feel invincible and arrogant. I could do no wrong. Addicts can’t live in those circumstances.

I am an addict.

My sobriety date is November 13, 2009. Today in fact is my six-year sobriety anniversary. It’s a time to give thanks but not to get wrapped up in celebration.

It was a Friday the 13th that I first stepped foot in the Ridgeview Mental Institution. Sobriety is not just about drugs and alcohol. It can be about almost anything. If there’s something that constantly nags at you and pushes you to live an unhealthy lifestyle; that is an addiction.

When I was an outpatient at Ridgeview, I witnessed all sorts of additions: drugs, alcohol, self-mutilation, etc. I learned some things about myself too that I probably would not have learned otherwise. I have an inner-arrogance about me that is very dangerous. When good things happen to me, they build into great things in my mind. While most would probably not be too concerned with that, please understand that the opposite happens as well. When bad things happen to me, they turn into extremely horrible things in my mind. I would go from being an egocentric maniac to believing I was the lowest form of scum on earth in a matter of seconds. I would go from feeling invincible to feeling as if I was the poster boy for Murphy’s Law. As my therapist explained it, I lived in extremes. I went years not being able to cope.

To me, the definition of anxiety and depression is not feeling nervous nor is it feeling sad. Experiencing these two sensations is like feeling everything at all times. When things are good, the problems tend to mask themselves but when things are bad, the problems are as visible as a huge monster cornering me in a small room.

Now let’s revisit a topic I mentioned earlier. Does cystic fibrosis cause my anxiety and depression? I can’t know for sure but I know it has not been a factor in fixing it. Having to remember pills and being able to deal with bad doctor’s appointments were things I had to deal with growing up. Notice I said “deal with” rather than “cope with.” Imagine having a disease in which your life expectancy was that of a teenager. Imagine having to get your care done at a children’s hospital because for the longest time adult clinics did not exist due to lack of need because patients generally did not live to see adulthood. Imagine a disease which requires administering hours of treatments and taking copious amounts of pills just to attempt to avoid regular hospitalizations. For most, including myself, it’s a devastating feeling to deal with 365 days a year.



The reason for my anxiety and depression?

Over the years, I’ve developed a skillset to help me cope with depression and anxiety. For one, I repeat the serenity prayer during the worst of times but also when things could not be better. I’ve learned to call my sponsor if I encounter a situation in which my sobriety could be at risk. Finally, I’ve learned that I’ll never be a “recovering” addict because my issues with depression and anxiety will never go away. I can cope with them now but I will never say that my problems are behind me. They are constantly with me and to ignore that is forgetting everything I learned from my days at Ridgeview.

Thank you for reading and if you do feel like you have an issue with depression, anxiety or any form of mental illness, seek professional help. Getting assistance for emotional issues doesn’t mean you’re weak.

On the contrary, it demonstrates your strength.



Live your dreams and love your life.

Andy

Bad news

You know when people tell you do you want the good news or the bad news? We all know that the bad news must really suck. I've learned my lifetime when it comes to that is that I always want to hear the bad news first and then in my mind sort of as a filter I want to turn it into good news.

The Braves Way needs to hit the Highway

John C. Malone

Chairman

Liberty Media

 

 

Dear Mr. Malone,

 

My name is Andy Lipman. I’m 41 years old from Atlanta, Georgia. I was born in Atlanta in 1973 but my Atlanta sports allegiance did not begin until 1982. 

Let’s flash back to that season. That was the year the Braves started the season at 13-0, a Major-League record to start a season. For most, that spring was mostly about wins and losses. Not for me though.

That 13 game winning streak meant a heck of a lot more to me than just baseball. It was around that time I learned my life expectancy was 25 years due to the fact that I was born with cystic fibrosis. My father got me into America's pastime that spring. I needed the Braves then a lot more than they needed me. 

Those 13 straight wins kept me playing baseball and therefore improved my lung capacity. Baseball is a part of the reason I’m 42 this Friday and still thriving with this disease. Like I said, I needed baseball, specifically the Braves, back then a lot more than they needed me.

 

Let’s turn to present day. The Braves have one of the worst teams in baseball, attendance is dwindling and fan support is at a low I haven’t seen since the team moved to Turner Field. 

There’s a disconnect between the Braves and its fans. Just as an example, I went to the Yankees game yesterday as I am a season ticket holder and I was embarrassed to tell my 7 year old that we are still considered the home team despite the fact that 60% of the stadium wore Yankee pinstripes. 

 

Mr. Malone, all I keep hearing about is "The Braves Way." I get the marketing strategy to get younger in order to succeed. Heck, I predicted it going into the offseason. I understood the Heyward trade though it pains me to realize that you’re essentially saying we couldn’t afford him when he becomes a free agent. I understood the Justin Upton trade though once again I’m miffed that you’re saying we can’t afford him. I understood the Gattis trade because the guy couldn’t be a solid catcher. I even understood trading Kimbrel BUT only because you were starting over and you were able to get rid of Melvin Upton. 

 

Here’s what I don’t understand. When did the Atlanta Braves become a small market franchise? When did "The Braves Way" become putting the brand over the team? When did ownership stop caring about the everyday fan? 

When Ted Turner was at the helm, he either got the big named free agents or at least had the Braves as one of the teams that was in talks with the high-priced guys. I looked at ESPN after last season and the Braves were not listed as favorites for any of the best players in free agency. 

Here are some other things I don’t understand. Why do we still have Fredi Gonzalez? He’s a terrible strategist and knows very little about sabermetrics which is a key metric to winning in present day baseball. I also don’t understand why we drafted about 50 pitchers in this year’s draft when hitting is our biggest weakness. You may say we’ll trade that young pitching for hitters but we haven’t exactly brought in any great hitters into our minor league system lately. We then took money we weren’t spending on guys like Heyward or Upton and signed an outfielder to a long-term deal who was past his prime and about to go under the knife. Markakis had a decent year but he can't hit for power anymore and his better days are far behind him.

We were told "The Braves Way" meant getting younger but we followed up trading some of our mid-20 stars by signing an aging catcher, several past-their-prime outfielders and a couple of scrap heap relief pitchers. 

I didn’t expect to trade our number one minor league prospect, a good young pitcher and a few other players for a couple of scrubs and a 30-year old player with an injury history who is still NOT considered ready for the big leagues. That doesn't sound like "The Braves Way." I think Olivera will be our modern day Brad Komminsk. If you don’t know about Komminsk, he was supposed to be the next Dale Murphy. He wasn’t even as good as Eddie Murphy.

 

Mr. Malone, I have never met you and never heard a word from you about the team that has given me and millions of people around the country reasons to turn on the television or walk through the gates of Turner Field. I want to hear from you or John Coppolella or John Hart or Jon Schuerholz or anyone with the name “John” who is a Braves employee as to why we are basically tanking when kids like mine want to root so badly for this team. 

We are being insulted as fans that the big deal surrounding this team is a new stadium. We don’t care. I don’t go to Braves games for the “fan experience.” I go to see a competitive team that will play its heart out for our city and I believe that most season-ticket holders will agree with me.

 

Somewhere there is a kid like me who needs another “13-game winning streak” to keep his self-esteem going during a difficult time. Somewhere a young Braves fan needs a run like in 1991 for some extra motivation to get him through a tumultuous time. Somewhere there is a kid who needs a CHAMPIONSHIP reminiscent of 1995 so that he doesn’t have to focus on all of the medical treatments he has ahead. 

Thirty-three years ago I needed our Braves to get through my treatment-filled days. Today I believe that they need me and millions of others to stand by them and bring back the success that our fans deserve.

 

Thank you for your time. Please come to Turner Field sometime and witness firsthand the amount of empty seats and the number of fans wearing the visiting team's jerseys. It might be an eye-opening experience for you.

Please help us bring back a professional baseball franchise to Atlanta. If you can’t bring this kind of competitive unit to this city, I beg you to sell this team to someone locally who can. 

I realize you need some type of stock in return but please consider the working man who spends a good percentage of his salary to attend games. Please consider the lifelong fans who have been watching games since before you were even born. And of course, please think about the kids who are learning baseball for the first time and need a local team to root for. Those are your future season-ticket holders.

They are a lot more important than a few pieces of paper to someone like yourself who honestly doesn't need the money.

It's time to scrap "The Braves Way" and change it to "The Atlanta Way."

We are all in this together.

Sincerely,

 

Andy C. Lipman

Atlanta native & a Braves fan forever

 

 

It was just...time

Andrea's good friend Juan, who doubled as her tennis coach, asked me from time to time in his easygoing Argentinian accent, "When am I going to see you back on the court?" I had told Juan that I used to play but I just didn't have time anymore. 

My son often asked me what sports I played as a kid. "I played baseball, basketball, soccer and some tennis," I always reply. Tennis was always last on my list. It's the sport I wanted to forget. Why? I couldn't even figure it out until recently.

For years, I played competitive tennis as a junior. I was never ranked in the top 50 nor did I ever win a singles tournament. I'm just saying not to compare me to Roger Federer. 

I was 18-0 in high school doubles but I was never one of the top players on a highly rated high school team. Still I loved the game and for the most part it loved me back. The constant moving back and forth caused me to release my mucus and therefore kept my lungs in decent shape. As the years went on, I won a round-robin tournament, made it to the finals of a ranked tournament (in which I knocked off the top seeded player in the semifinals) and began taking lessons several times a week. I even gave lessons to young kids over the summers. 

The problem became when I won, it was more a relief than a thrill. When I lost, I thought about it for weeks and months and criticized myself for hours everyday. I would throw my racket all over the court and scream when I lost points. When I came home, my dad would ask how I did and it would pain me to tell him when I lost. When I won, I just said "I won. Going to my room now."

After my high school days, I decided not to try out for the UGA tennis team. I used to play the team's racket stringer several times a week and won a few more times than I lost. I knew with that record I was never going to be able to compete on a top ranked NCAA team.

I stop playing tennis my freshman year and only played off and on for the next decade. I played on a club team in the early 2000's and got so frustrated after being eliminated from two straight playoff matches that I had an emotional breakdown in my car while my wife tried to console me. Tennis, while keeping me physically healthy, was emotionally killing me. 

Slowly I went from playing on club teams to being able to count on one hand how many times I played per year. Finally, four years ago, I just stop playing. My rackets went from being stored in the house to the garage to eventually the back of the storage room in the basement.

Why was it so hard for me to go back to the storage room, grab my racket and ask someone to play? Then it dawned on me, I realized what tennis was for me.

Tennis revealed my issues with depression and anxiety.  The losses were horrible and the wins were acceptable. Tennis may have loved me but in truth I hated tennis. It brought out the worst in me. It triggered my depression.

I learned to cope with all the things that brought out my anxiety and depression. Well, except for tennis. That didn't become clear to me until last fall. Andrea was told that Juan passed away. She was shocked as were all of the tennis players at our facility.

As several hundred people stood on the courts remember Juan, I stood on a tennis court once again with sadness. This time it wasn't about me about it but about a person we had lost way too early.

Juan always asked me to get back on the court. I always refused, claiming that I just didn't have enough time.

But in fact, there was no better time than now.

When we returned from the funeral, I threw my racket case in the car along with my tennis shoes. I didn't immediately go back to playing but I realized I was done refusing the game.

Today I'm taking lessons once a week and I have partners that I play with here or there. I even joined a competitive team. My game is totally different now. Back in my heyday, I was known for lobbying and just keeping the ball in. Now due to my increased workouts, I am hitting the ball a lot harder and with more overspend. I have a completely different game. But the most important thing is that I have a completely different attitude.

My Titanic

I don't shy away from being open and honest about my mental issues. In fact, I often discuss my issues with depression and anxiety. Recently, I’ve been confronting another emotional stressor, that of envy.

 

I feel as if I'm trapped on the Titanic. Half of the ship is being rescued while my half wonders if we are doomed. In this case, people aren't being rescued based on wealth or social status, rather their survival depends on their genotype.

I feel like I'm never going to get off this boat.

Over the last 12 to 18 months, two major pharmaceutical breakthroughs have helped more than 50% of the CF population improve their lung function. The new drugs, Kalydeco and Orkambi, are not effective for the type of CF I have. 

 

While people like me are happy for those who are being treated, we are disappointed that we are not candidates for either of these drugs. Knowing this makes me feel as if I’m trapped with that disappointed CF population on a sinking ship. Emotionally it seems so unfair to read discussions on social networks like Facebook dedicated to talking about how patients' lives are so much better after taking these miracle drugs. I feel so selfish for revealing my envy.

It haunts me that my "breakthrough drug" may never exist.

I'm not fighting any less to beat this disease. I spend most hours of the day and night doing treatments, running, working out and doing whatever it takes to stay strong with cystic fibrosis. Yet, there is a part of me that is envious of those who take these new drugs and get to feel so much better. I'm sure that one day my genotype will have a breakthrough treatment. I know there are several companies working on one,and the previous FDA approvals only add momentum for future successes. Still, it is difficult to wait and wonder. 

 

Neither new drug is a cure, but then not all rescue boats are guaranteed to reach the mainland safely. Still, like the drugs, they offer hope. I worry that by the time the right drug is available for me, my ship will have already sailed or worse, sunk.

 

Still, this wouldn't be a post from me without a positive spin. I may have already received my first "miracle" drug 9 1/2 years ago, and then another 2 1/2 years later. I'm referring to the birth of my children. 

 

Avery and Ethan have changed my life. My health is no longer just about me. It's about them too. I want to keep getting stronger so that I can see all of the milestones in their lives. They have changed my life more than any pill could. I think that perhaps each of us has received a miracle drug some time in our lives but might not have recognized it as such because it wasn't something we had to swallow or inhale.

These miracle "drugs" got me to 40!

And they will get me even further.

We each need to find our miracle treatment. It may just be looking us right in the face. 

In my case, that couldn't be more true.

Live your dreams & love your life.

Andy

Life & Death

Ever heard the old expression, "Life is an open book"? Like a book, life has a beginning, a middle and an end. 

Sadly, a lot of people focus on how the story ends rather than enjoying the development of the characters,  the vivid descriptions, or plot line progressions of the story itself.

Just a few years ago, I was strapped to an IV pole, struggling with pain all over and enduring a terrible smoker's cough though I'd never even taken one puff of a cigarette in my lifetime. Just another miserable day fighting cystic fibrosis.

During that episode, I lived in a constant state of fear. I wasn't worried about how I was going to live my day rather I focused all of my energies on how I could outsmart death. What I didn't realize then was that I should have concerned myself more with the former than the latter.

Why is it so important to worry less about dying than worry more about living? I guess in short, everyone dies but not everyone lives. Yes, we all technically live because each of us breathes but I believe the true definition of living should not just be to inhale and exhale oxygen 24 hours a day. Living, to me, is attempting something that scares you. Living is going somewhere that is outside of your comfort zone. Living is accomplishing feats that are considered improbable.

My definition of living probably varies from many of you. I have lived with an enormous chip on my shoulder since I learned of the mortality rate that came with having this incurable genetic disease.

Living with cystic fibrosis provides me with a tremendous opportunity to view life more appreciatively. We each live only once so really it doesn't matter what ends our tour on this earth. What matters is how much we appreciate our days while we are here.

Does this mean that I am grateful every moment that I spend on this planet? Heck no! There are days when I wonder "Why me?" There are mornings that I wake up on the wrong side of the bed. There are occurrences that cause me to question life's fairness. These moments, however, are brief compared to the times that I relish experiencing another day as a part of our beautiful world.

Too many times I hear people complain about the "small stuff." Why is traffic so slow today? Why is there nothing good on television? Why does it continue to rain?

Perhaps it's perspective.

With traffic being so slow, I have more time for self-analysis or to listen to my favorite CD.

If there's nothing on TV, I can take that time to enjoy my family or take a much-needed nap.

If it continues to rain, I can work on a project that I've been pushing aside for months. I can call someone I haven't talked to in weeks or perhaps months or even years.

Life isn't about dying. If it was, we'd all be the same. It's about living and therefore we are all different. We each have the choice to make the most of every moment. If we don't, there is no one else to blame but ourselves.

The final chapter of your story shouldn't be the best one. Don't just skip to the last page; that's not where life happens. Enjoy your entire story. Make it the best book ever written.

As always, Andy

Live your dreams & love your life

Changes

So it's been a crazy few weeks for me and my family.

My company was officially sold today and therefore I am bidding farewell and focusing more on health, family and a passion project (that I'm still figuring out). The company was in the process of being sold for some time so leaving DiversiTech was not an overnight decision for me. It was great to sell the company and have a lot of people prosper from the sale. It was also a relief to sell to a company that was going to keep most of our organization in tact.

Leaving my job is difficult. I've already informed my co-workers and suppliers. I even informed my personal trainer that my days at the fitness center are numbered as it is too far from my house. She looked as sad as I look each time she tells me to do 20 burpies.

If anyone wants to reach me, you can still do so at andy@andylipman.com or alipman2001@yahoo.com.

I want to continue speaking as a profession. I'm already in touch with a few people as to how to take my speaking to new levels. I remember the final episode of Mary Tyler Moore when Mary and her co-workers are extremely emotional as they leave for the final time. I think I'll leave with those same feelings. The last thing I'll take from my office is the name tag that has stuck to my door for the last 18 years.



Mary, I get it.


CF patients rarely have the strength nor the employer support to be able to keep a full-time job. I've been fortunate to have an understanding team and the ability to work at my company for nearly 18 years. I'm going to miss DiversiTech. When I arrived, we weren't a very big company but as I leave we have been a Top 100 private company in Atlanta for more than 5 years running. Doing treatments prior to work, at lunch and as I departed each day just became too much for me to handle. My last day will be this Friday May 22nd.

In other news, the FDA Advisory Council recommended approval for another great CF drug Orkambi from Vertex Pharmaceuticals. It doesn't yet affect my genotype but we are headed in the right direction as it affects 50% of CF patients. There are lots of cool studies going on. Too many to mention here but we seem to be getting ever-closer to a cure for this dreaded disease.



More great news for the CF Community


The girls' softball team I coached made it all the way to the finals. I was so proud of my Ducks specifically number 9 on my team. That's Avery. She came in with no softball experience and a fear of the ball. She leaves as a top outfielder and a 5-for-5 hitting performance between the semifinal and championship game.



Quack! Quack!


My son made the All-Star team. I'm so excited for Ethan. We've been spending everyday lately at the fields. In fact, Saturday I had the wrong time and we arrived 2 hours early and we ended up warming up for half that time. The kid can't get enough of baseball. Or basketball. Or football. I wonder how he became a sports junkie. Yeah, I know.



Play ball!


Andrea is doing great. She's been very supportive during this period of change. She has done an amazing job orchestrating a new home project. A pool!!! It should be ready before the summer. We can't wait!



It's coming along swimmingly.


I'm dealing with some anxiety wondering how my life will change with so many things up in the air, but over the years I've learned how to cope with these sorts of changes. Overall, this is a very positive change. I guess part of me feels like having a fulltime job was another way I was beating cystic fibrosis. I felt that same defiance by having children, being able to exercise daily and by living past my 40th birthday. I will find other ways to defy it though.




My change in lifestyle won't affect my goal to raise awareness for cystic fibrosis.

Just a few more days till I bid farewell to one stage of my life...

or should I say just a few more days until I begin a new one.

Live your dreams and love your life.

Andy

Howard at 39

Today would have been Howard Lipman's 39th birthday. He was my best friend growing up. He was the one I could tell all of my secrets to. When I was dealing with major coughing attacks, he was the one who didn't ask if I should go to the doctor or show constant worry on his face. He just sat by my side and listened to my concerns. He was the one who made me laugh when laughing didn't seem possible. He gave me hope when hope seemed lost. He relieved my fears when I had every right to be scared to death. I loved him and he loved me.

Howard was a crazy guy. He used to drive the girls wild. He was extremely affectionate, but he could be tough too. He once stood up for me when a bully attacked me. Still Howard got in a lot of trouble and I know there are times when my parents wanted to ship him to Antarctica. I'm glad that they never did because Howard...

saved my life.

In the 15 years I knew Howard Lipman he didn't speak one word yet his constant listening spoke volumes. Howard believed in me when the Vegas odds would have called me a longshot. Howard was there when I read the encyclopedia article that told me I would not see 25. Sadly the truth is that my life expectancy was always greater than his but he showed me that living in the moment was all that mattered. Howard was there when I got my first therapy machine. Though he was scared at first, he still sat with me as I turned on that noisy metallic monster. He never saw me as the kid with cystic fibrosis. He saw me as his best friend.

Howard died 23.5 years ago.

The fact that Howard was a dog does not lessen his loss one bit. I never saw him as "just" a dog. I saw him as a brother. I saw him as a great friend. A best friend. And I will celebrate his memory every April 1st until the day I pass.



Howard wasn't just a dog.

We got Buddy last summer. The primary reason I wanted a young dog was for our other dog Magic to have a playmate. What I didn't realize is that we'd found a crazy, mischievous dog who licks everybody who gets close to him. I always wanted my kids to meet Howard. Seems like they're getting that chance with Buddy. As much as I want to beg him to stay out of trouble some days, I look into those doe-like brown eyes and I see that brown crazy mutt who wrecklessly ran into my life 39 years ago...more like ran into my heart. I see my best friend. I want my kids to experience that same unconditional love.



The moment my kids first held Buddy they began to feel a love I'd never thought they'd get to experience.



Now they're experiencing it.

Glad "Howard" is back...

though I still miss the original.

Love you Howard.

YOUR BEST FRIEND

What's the point?

So I was thinking about something the other day.

What’s the point of doing my best when I’ll probably die from this disease anyway?

What's the point of spending every moment of my life dealing with an incurable beast?

What's the point of having dreams when they seem so unattainable?

Some people would say “Well that’s a defeatist attitude!” Until you have a terminal disease like cystic fibrosis, it’s difficult to judge a person for that opinion. These were the questions that filled my head throughout my early college days.

I have a doctor's appointment this Thursday and I don't know how it is going to do. I work my tail off each day to fend off the effects of cystic fibrosis but honestly during some of the more exhausting days of working out combined with the trials of having CF, that question still pops into my head a time or two.

It's taken me a long time but I do understand now "What’s the point?”.

The point is that there are no dress rehearsals in life. You’re dealt a hand and those are the cards you have to work with. You could give up and die. That’s your prerogative but you’re not getting a second chance.

I look at cystic fibrosis as an opportunity to do something great. I look at it as an opportunity to build a legacy. I look at it as a way to create hope for others.

My parents were told I wouldn’t see my teens. When I was 8 years old, I read that I wouldn’t see 25. Most of my life I’ve been chasing the median life expectancy. Now it’s chasing me. I prefer to live my life like anyone else. I have dreams. Heck, beating CF is a dream in itself. I’m not adjusting any of these fantasies because of cystic fibrosis. Yes, the path to achieve them may take longer and that path may involve some obstacles and U-turns but it’s not going to change my motivation to get there. My wife and I had to go through IVF to have children, but fortunately it worked out and we have two beautiful kids. Not the ideal way to have kids but it worked. Dream accomplished. I wanted to run the Peachtree Road Race. When I train, there are times that I have to stop and spit and catch my breath. I've run it 18 consecutive years. Dream accomplished. I wanted to go to college. I had to understand compliance with my meds, deal with my depression and learn from emotional and academic failure. I graduated college in 5 years. Dream accomplished. Not the ideal route for any of these things but the end result was all that mattered...although each journey taught me a lot.



When I was a kid, I was scrawny and sickly - the ideal picture of cystic fibrosis.



As I got older, I realized that the ideal picture could change.

“What’s the point?” The point is anyone can die but not everyone can live. I want to live. I have a dream that my tombstone one days says "Andy died from natural causes." BUT even if I do die from cystic fibrosis, I hope that no one says I lost the battle to cystic fibrosis because I will fight everyday to ensure that CF never beat me. By the way, I don't think anyone has ever truly lost the battle to cystic fibrosis. Each of us fights at some point at varying degrees.



We were always taught that life isn't a fairy tale but with hard work, maybe it can be.

"What's the point?"

We each have a terminal disease. It's called life. Whether I die at 45 or 95, I'm going out on my terms not the terms of the disease that has been affecting my body for more than four decades. Cystic fibrosis has given me amazing opportunities. I've gotten to run with the Olympic Torch and tell my story to tens of thousands of people. I've gotten an opportunity to help people who were void of hope. I remember the line from Spiderman. "This is my gift, my curse." That in one sentence is cystic fibrosis to me. Yes, CF is a curse because I deal with pain, hours of therapy and taking copious amounts of meds every day. It's a gift too though. It helps me to appreciate every single day which a majority of people cannot do. It gives me opportunities that other people my age will never have. It also made me focus on some things that I otherwise would not have been interested in. I got into working out because I knew it might be the only solution to save my life. Now I'm a workout fanatic. I don't think I would have had my heart set on helping a charity if I didn't deal with the struggle of fighting the disease that the charity supports. I don't think I would have developed my sense of humor if it wasn't the best defense mechanism in my arsenol. One of the reasons I was introduced to my wife was because of my story...and for that reason alone, I cannot regret having cystic fibrosis.

"What's the point?"

The point is that I'd rather spend my life living than concern myself every moment with dying. And who knows? We might just see a cure in our lifetime...and I definitely want to be in the best possible situation to take advantage of it. I just refuse to give up on that possibility.

That is the point.

Live your dreams and love your life!



Andy

Foster Care

Seventeen years ago I signed up as a free agent at Atlanta Club Sport so I could meet people and play softball. This guy Tim had an opening on his team and selected me. I didn't know Tim nor did I know anyone else on the team. I was the second youngest guy on the team but liked the group that I was playing with. We went to parties together, went out after games and talked about our love lives, our jobs and whatever else we could think of. I kept one thing from all of these players, the fact that I had cystic fibrosis. I never talked much about my CF. I was embarrassed that I wore a vest every morning and took pills before every meal. I just wanted to fit in. I wanted to be a softball player. I wanted to be Andy Lipman. I didn't want to be the guy with the terminal disease.

A few months into my run with Fluffy En Fuego, one of our players, Bob Foster, told us that he needed our help...again. "Again?" I wondered. Apparently Bob ran a tournament every year called the Cigna Sports Challenge. Bob wanted volunteers for this event which featured Tug-A-War and putting for holes in one just to name a few. Bob told us it was all for a good cause...the Cystic Fibrosis Foundation. I hadn't visited the CF Foundation since I was a kid with my mom. I tried to separate myself from it. Everyone on the team volunteered and finally I relented and agreed to help out. Bob was one of those guys you wanted to support. His car tag read "BMOC" (Big Man on Campus). That's how he carried himself. He was one of those guys who you wanted to befriend. Bob and I went to the softball field early some days and played catch. He was the guy who hit a ton of balls over the fence and had this arrogant, yet funny, way about him.

I took part in the Cigna Sports Challenge as a volunteer and saw 2 young girls with CF who received a standing ovation from everyone afterwards. Bob announced that they were the reason that he did this event. Bob didn't have CF and to my knowledge he didn't have any close friends or family with the disease. Still out of the goodness of his heart, he helped put this event together over by Georgia Tech every year. That day a bell went off in my head. I wanted to run something for CF. That's where the idea of Wish for Wendy developed. Bob's influence had changed my life. To this day, I owe him for giving my life special meaning.

Our first year running Wish for Wendy was 2000 and Bob, as he promised me, put his own team in to help the cause. His Intellisales team had several of my teammates on it and I still have a note from Bob on the first Wish for Wendy poster which told me he was proud to help with this cause. Bob and I eventually went our separate ways as Bob got married and moved to Florida. I still thought about him often and looked him up to see what had happened to him. I hadn't heard anything until a few weeks ago.

I got a note from one of my old teammates Cary that Bob had Lymphoma and nothing was working. He was trying something experimental but odds were it wouldn't work. I contacted Bob's wife to check on him. She forwarded me a letter from Bob to all of his friends. The experimental procedure didn't work. Bob, as we speak, is in hospice care and probably won't be around much longer.

Bob, if you're reading this, thank you for all you did for the Cystic Fibrosis Foundation and for being a mentor for me. I will always be grateful that you took a naive 20 year old kid under your wing and showed him what being a leader is all about. You are a true inspiration and your family will always be in my prayers. It's ironic that the man who gave so much to those who had a disease that diminished their life expectancies is now the one battling a disease that will take his life way too soon.

There's aren't many Bob Foster's in the world. I'm just honored and forever indebted that I got to meet one of them. Bob, we love you guys and your legacy will last even when you're gone.

All my best,

Andy



Bob, Jennifer and their beautiful family

A health update & life in the world of CF

Hello everyone,

I hope that all of you are doing well. My pulmonary function numbers were up in November from 74% to 82% so I was thrilled about that. Some have asked what I think the reason could be. I'm using the new Afflo Vest twice a day during the week along with the Hill Rom once a day. I'm also running quite a bit more on the treadmill. I've doubled the time and distance on my runs. Other than that, I have not made a lot of drastic changes. I know that it's only a matter of time before cystic fibrosis rears its ugly head this winter. That's not me being negative. I'm just being realistic. I've enclosed my latest picture from the gym to show you how hard I've been working.



CF must stand for Can Fight (notice my hand gestures)

I've been traveling around the country quite a bit the last few months speaking to raise awareness for cystic fibrosis. I have spoken in Reno, Orlando, Kansas City and Chattanooga. I have to admit that while I enjoy spreading the message that traveling with all of my CF equipment is extremely difficult. First off, it's heavy and it's usually just me. Secondly, the security line involves an extra 15 to 20 minutes for me to explain what the heck that vest is. Third, it's stressful making sure that I don't forget any of my meds when I travel. Still, if I reach one person along the way, it's all worth it.

It's been a tough winter for me emotionally. The CF world has been filled with death including the husband of one of my friends. I didn't know him very well but I often followed his journey and knowing that his wife lost her husband and his adorable son lost his father is quite painful. It's forced me to wonder what my kids would do without me. How would they turn out? They have a great mom so I know they would be okay but I definitely want to play a role as they grow up to be young adults. All I can do is work hard and hope for a little luck along the way.



I may be on her shirt (thanks Aunt Susie) but Avery as well as her mommy and brother will always be in my heart.

While asking CF patients around the world about being in our Katy Perry video, I've come to learn that most people have trouble doing the video. The reason is generally not because they don't have enough time nor is it because they're embarrassed to show their nebulizer on camera. The reason predominantly is because they're in the hospital. That's an unfortunate part of having this disease. That's the reason why this video needs to be made and why we must find a cure. Too many people are getting sick. Too many people are in the hospital. Too many people are dying.

Fear has surrounded me my entire life thanks to cystic fibrosis. One subpar doctor's appointment when I was young meant talking about months of antibiotics and more visits to the dreaded pulmonary division of Grady Hospital, the same hospital where people were carted in after being shot. (On a strange note, Grady is the hospital that is now featured in The Walking Dead). I've noticed that those memories have kind of programmed me to be the way that I am. I live in extremes when it comes to health. My daughter comes to me to tell me about a headache the other day and in my head I'm thinking...brain tumor. My son falls and my first thought is a break, a possible surgery and a lengthy rehab. These aren't exaggerations. These are true examples of just the past few weeks of how I think the worst when it comes to health. Some people try to imagine the worst case scenario just to be prepared. I seem to think it's a reality that it's going to happen so I don't even think about any potentially good news. When I wrote "Alive at 25", I interviewed several people with CF. It was the first time I'd had any sort of contact with CF patients other than one previous encounter when I was a kid. I spoke with two fellow patients over the phone and through e-mail. Both Jason and Kathy were great athletes. Jason worked for the Charlotte Hornets at the time while Kathy played college hockey. Both told me how important exercise and sports were to succeeding with cystic fibrosis. Both were role models of mine who gave me hope that this disease was beatable. Both died several years ago from complications of cystic fibrosis.

CF is not prejudiced. It doesn't care what religion you are, what color your skin is or how old you are. It just kills anyone that it can. First, it destroys your lungs and pancreas. Then it steals your hope. Then it takes your life.

Does this mean I won't work hard because I think everything I'm doing is useless? Absolutely not. One day there will be a cure and my goal is to be ready for it and my second goal is to show those that are younger than me that they can be ready for it too. I'm not invinceable. Not even close. But I am a fighter. I am someone who doesn't quit when the going gets tough. I can't. I have too much on the line. I have a beautiful wife and two amazing kids. I won't quit on them. I can't quit on them. What kind of example can I be to my children if I just sit in bed and mope? You'll find a lot of CF patients who are like me. We can joke about bad news. We can smile when everyone around us is frightened. We all grew up a lot faster than we should have had to.



It's easy to fight a disease when you have a support system full of superheroes.

As I conclude, I don't want to give the impression that everything is negative. There have been a lot of positive things this winter, too. My Nana Rose, a survivor of the Holocaust, turned 90 last week. The same woman who lived underground and saved a little baby from her likely demise is still going strong. She is amazing! My softball team is once again in the final 4 as we play tonight to try and win our 3rd championship in the last 3 fall seasons. Ethan is playing basketball this season and Avery is back at it with gymnastics. Andrea is kicking butt on the tennis court and we have a lot of fun plans this winter. The Katy Perry video is coming along nicely though I still have yet to reach Katy herself. Still I'm not giving up. That's one thing cystic fibrosis has taught me. Quitting is not an option.



Happy 90th Nana Rose!

I wish all of you the happiest and healthiest of holidays.

Live your dreams and love your life,

Andy

And the winter is...

Many of us watch a two-hour movie like “Rocky” and think we can overcome the odds like that. We can win against even the toughest of opponents. Success comes to those of us who work for it no matter what.

First off, that was a movie.

Second of all, it takes a far longer time to defeat a resilient adversary than two hours.

Third, Apollo Creed doesn’t hold a candle to depression.



Depression is a much tougher opponent

I’m generally a positive person as most of you who know me would probably attest. Still I’m having a difficult time these days staying positive.

It has nothing to do with my family. Andrea and the kids are doing amazing. Ethan’s sports enthusiasm, Avery’s humor and Andrea’s love are what keep me from losing it most days.

From those who don’t suffer from depression, I hear the usual remarks. “Why are you so down?” “Smile once in a while.” “There are so many people worse off.” “But Wish for Wendy was so great!”

What people don’t understand is that depression isn’t usually caused by one thing in particular. It’s just a feeling that gets progressively worse and people like myself need medication and/or to see a therapist to maintain some sense of sanity.

This time of year is predominantly worse than any other season for me. I discussed this fact with my therapist the other day and decided to detail all of the things that have caused me to despise the winter time. I’m dedicating today’s blog to providing a list of these issues.

For most individuals, winter depresses because we wake up and it’s dark and we leave work or school and it’s dark. That’s a part of why the winter brings me down but only a small part. My reasons are more specific to my past.

As I write this, I also just got the news that one of our closest family friends Dr. Laurence “Larry” Rivkin has passed away. Dr. Rivkin was an amazing man who was close with my parents and was like a family member to me. Dr. Rivkin was also a pulmonologist and was always one to give me advice regarding my physical and also my mental health. He was a key in getting me into Ridgeview years ago, a move that dramatically changed my life. My family will miss Dr. Rivkin greatly as will so many others. This means I will be going to a funeral this week as well as facing my doctors at my CF Clinic. It’s not going to be a great week.



Dr. Rivkin was always there for our family. It seemed whenever we had a question that he had an answer. Sadly I know that there will be so many questions left unanswered.


Here are 7 reasons that winter has been a tough time for me and how I’m looking for solutions to make things better.

1

PROBLEM: My Health

One, this is primarily the time of year where my thoughts turn toward my health as I’ve been down and out from CF most winters. Cold weather creates more pulmonary exasperations. I don’t just worry about me. I worry about doing less and therefore asking my wife and kids to do more. It seems so unfair to me. I’m already on an oral antibiotic as I called my doctor because my cough was worse than normal. It wasn’t all that noticeable to those around me but I could tell. I’m trying to be smart and do things to keep me strong. I have my doctor’s appointment this week (Thursday) to check my PFT’s and also to do a bone density scan to see if I have osteoporosis. I’ll also be checking my glucose in the next few months to see if I have CFRD (CF related diabetes). It’s a lot to deal with.

SOLUTION: Positivity

My solution is to constantly push myself in the gym. I’m still working out with my trainer twice a week. I’ve gone from running a mile a day on the treadmill to 1.5 to 2 miles a day. That’s an extra 3.5 to 7 miles a week which should help my lungs. I also have to understand that if my lungs are having issues or if I do have Osteoporosis or CFRD that it’s not the end of the world. I will just have to do things to improve them and those are all possibilities. Do I feel horrible right now? No, in fact, I think I’m in as good a shape as I’ve been in a long time. No test results can change that. Dr. Wolfenden, my doctor who passed away a few years ago from breast cancer, used to tell me that it’s not what the results say. It’s how I feel that matters the most. The results are for the doctors to make adjustments to keep me strong.



Battling cystic fibrosis is a 24 hour a day, 7 day a week job but in the winter it feels even longer.


2

PROBLEM: Depression

This is the time of year that my depression rears its ugly head. As I mentioned earlier, I spent 3 weeks as an outpatient at Ridgeview several years ago. I don’t talk much about it but it was an eye-opening experience for me. I learned how to manage my issues and cope with my problems. I found my psychiatrist there and he has been a big help in turning my life around. I still claim that admitting you have depression and/or anxiety doesn’t make you weak. In fact, it does the exact opposite.

SOLUTION: Seek help

My bouts with depression this time of year are why I made sure to see my therapist this month. I also scheduled a bi-monthly massage to cool my anxiety. The important thing is to monitor my issues and communicate them with my wife and my doctors. Sometimes that’s easier said than done but it’s a must to being mentally strong.





Battling cystic fibrosis is tough. Battling cystic fibrosis AND depression feels nearly insurmountable.


3

PROBLEM: Focused on dying

Many of my CF friends have passed away in the winter time and sadly there have been a lot more CF fatalities lately. It’s almost become commonplace to hear that someone from CF is in the hospital or worse, died.

SOLUTION: Focus on living

I’m working on a Katy Perry CF video this winter to bring a little bit of the positivity back. It will be like the nebulizer video from last year. I believe that will help my spirits. I also believe it is my off-season work to beat CF. Wish for Wendy raises money. These videos raise awareness.



Katy, I hope I can "roar" when this winter is over.


4

PROBLEM: Rusty

Four years ago this month I lost one of my best friends as Rusty Sneiderman was shot and murdered. Over the next few years, we dealt with defiant lawyers, hate mail, constant calls from the media and tumultuous trials. It took a lot out of myself, Andrea and everyone else involved.

SOLUTION: Rusty

I can just remember Rusty for all of the good things he brought to me and my family. He left us way too soon. I still miss him most days.



Buddy, I miss you.


5

PROBLEM: Family

Wendy died in the winter. While Wendy was born and died before I was born, I could still feel the pain that Wendy’s loss put on my parents. My mom used to remind me every year around Wendy’s birthday how lucky I was. I didn’t truly understand why she pushed this upon me until I was older and had my own children.

SOLUTION: My new family

The solution to this is to be a good dad to my children and help them understand how fortunate they are to be healthy. A lot of people take their health for granted. Sadly, I’ve never had that opportunity. My parents have always taught me to be grateful and giving. I hope that Andrea and I will be able to teach those same habits to our children. I also believe that the success of Wish for Wendy gives my sister’s life more positive meaning.



It's hard to measure what type of impact a person I've never met has made on my life.


6

PROBLEM: Sports

As far as sports go, baseball is far and away my favorite sport and it is over in the winter. Some would argue it ended early this summer for the Braves. Having to watch the Falcons and Bulldogs unravel is not a cure for making me feel better. My softball season is also over until March.

SOLUTION: From player to coach

This winter, I’m going to focus on playing baseball with Ethan and helping Avery to learn softball. She wants to play next season and I’m going to be her coach. She and I have a deal. I can’t wait!



I can't wait to teach them everything I know about the game I love.


7

PROBLEM: Highs and Lows

Wish for Wendy is in the books. I see so many of my friends for 12 hours that day in October and all of a sudden I don’t see many of them for another 4 to 6 months. It’s as if there is a big high and all of a sudden it’s like crickets chirp for the next several months.

SOLUTION: Making an effort

I need to make more of an effort to see my friends even when it’s freezing out. The introverted side of me has trouble making that effort. I still remember those days at the TEP house at UGA where I could not walk out of my room. I would grab the door knob, start to turn it and then let go. Sometimes you have to do things that are uncomfortable and for me that means making more of an effort to be social.



Sometimes I feel like this when Wish for Wendy is over. I am still talking but everyone is gone.


CONCLUSION:

So over the next 4 months, I will fight to be positive. I will continue to focus on my health but try not to over-analyze every aspect of it. I will communicate with my family and my doctors and make every effort to socialize with my friends.

This is the time of year where most days are a battle for me. I’m not going to pretend like this is “Rocky” and I’ll just fight my way to the top in 2 hours.

My goal is just to be standing in 4 months.

I look forward to the challenge.




Now ring the damn bell!!!



Live your dreams and love your life!



Andy